FAQs for Health Care Providers
My patient did not receive their link to the questionnaire via e-mail
Ask patient to check spam filter
Alternatives to sending the link to the questionnaire via e-mail are to
Use “view QR-code" and have patient scan the QR code directly with their smartphone
Use the “Copy link” function and paste the link to an e-mail or other means of communication and submit to the patient
I am moving to another practice / hospital – how can I update my profile?
Your Digital HPES profile is specific to the practice or hospital you are working in and to the patients assigned to that practice / hospital. If you move to another practice or hospital take the following steps:
Delete your current profile – the patients assigned to your current profile will be notified and have the option to download their personal data (questionnaire answers).
Once you have moved to your new practice / hospital create a new Digital HPES profile including your updated details. You can then assign your new patients.
My patient is moving to another health care provider, practice or hospital – how can they bring their Digital HPES answers?
The patient should go through the following steps in order to bring their Digital HPES answers to a new care provider, practice or hospital.
Patient should request to download their data through the link provided in the e-mail they receive for answering the Digital HPES questionnaire (or using this link: Export your data)
Check with the new health care provider if they have a Digital HPES profile and potentially share downloaded information with the new health care provider – if the new health care provider does not have a Digital HPES profile they can contact Ascendis Pharma
How can I delete my profile? And what will happen to the patient data I have assigned?
Log in to your Digital HPES profile and choose “deactive profile”
Your patients will be notified by email and they will have the option to download their personal data (questionnaire answers) within 30 days – after the 30 days patient data is permanently deleted
How can my patients delete their profile?
Patients can request to delete their profile by following the link included in the e-mails they receive when requested to answer the Digital HPES questionnaire (or use this link: Delete your data).
I received a notification that “a patient has deleted their profile” – what does this mean?
If any of the patients you have created in the patient overview have decided to delete their profile you will be notified that “a patient has deleted their profile”. You will not receive the specific patient name due to data privacy reasons, i.e. as the patient has decided to delete their profile and due to regulations they have the ‘right to be forgotten’.
Who will have access to my profile?
Only you have access to your profile using your log-in and password
How is my data and my patients’ data used?
The development of this tool is sponsored by the pharmaceutical company, Ascendis Pharma.
Ascendis Pharma will NOT have access to any individual data or personal information.
Ascendis Pharma will have access to limited aggregated usage data and HPES results data.
Any personal data provided by you and patients is mainly used for log-in purposes and system generated contact
See also the “Need help?” function in the Digital HPES tool for more information